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Elder Care Health Resource Directory
Agency for Healthcare Research & Quality (AHRQ)
Office of Communications & Knowledge Transfer 540 Gaither Rd., Suite
2000
Rockville MD 20850
Telephone: 1-800-358-9295 (toll-free)
AHRQ, part of the Federal Government, provides an information clearinghouse service that distributes Evidence-Based Summaries and Reports, Clinical Practice Guidelines, and other medical statistics and information. Call to order copies of guidelines on topics such as cardiac rehabilitation, treatment of pressure sores, or other publications on elder and long-term health care, health insurance, and minority health data. Visit the website to download Clinical Practice Guidelines on topics such as urinary incontinence, screening for Alzheimer's disease, and post-stroke rehabilitation.
AIDSinfo
PO Box 6303
Rockville MD 20849-6303
Telephone: 1-800-HIV-0440 (448-0440) - (English, Spanish, Portuguese)
Fax: 301-519-6616
ATIS, sponsored by the Federal Government, provides current treatment information on HIV and AIDS as well as answering HIV/AIDS related questions. Referrals to national, State, and local organizations are provided. All Information is free and confidential.
Alcoholics Anonymous (AA)
A.A. World Services, Inc.
New York NY 10163
Telephone: 212-870-3400
Alcoholics Anonymous is a nonprofit organization serving men and women who focus their efforts on helping themselves recover from alcoholism. AA’s primary purpose is to help members stay sober and help other alcoholics to achieve sobriety.
Alliance for Aging Research
2021 K Street, NW, Suite 305
Washington DC 20006
Telephone: 202-293-2856
Fax: 202-785-8574
The Alliance is a national, citizen advocacy organization offering free publications including Investing in Older Women's Health, Meeting the Medical Needs of the Senior Boom, Delaying the Diseases of Aging, and other aging- related subjects such as menopause, how to age with ease, and health care options under Medicare
American Academy of Dermatology (AAD)
PO Box 4014
Schaumburg IL 60168-4014
Telephone: 886-503-SKIN (7546) (toll-free) 847-240-1280 (International)
Fax: 847-240-1859
AAD, an association of doctors specializing in dermatology, provides pamphlets and general information about skin cancers, contact allergies (like poison ivy), shingles (herpes zoster), and other skin conditions. Audio-cassettes, news releases, and public service announcements on dermatology topics also are available. Contact AAD for referrals to certified dermatologists.
American Academy of Family Physicians (AAFP)
P.O. Box 11210
Shawnee Mission, KS 66207-1210
Telephone: 1-800-274-2237 (toll-free); 913-906-6000
Fax: 913-906-6075
AAFP, a national association of doctors in family practice, offers referrals to certified doctors via its website at www.aafp.org. Education and information on health care and disease prevention, as well as fact sheets on specific diseases, questions and answers about common health issues, self-care flow charts, and databases on drugs and drug reactions are available through the Academy's website at familydoctor.org.
American Academy of Neurology (AAN)
1080 Montreal Avenue
St. Paul MN 55116
Telephone: 1-800-879-1960 (toll free); 651-695-2717
Fax: 651-695-2791
The Academy is an association of doctors specializing in disorders of the brain and central nervous system. Contact AAN for information about neurology. Visit the Academy's website for referrals to accredited neurologists. Publications include the AAN's Patient Information Guide on neurological disorders and treatment.
American Academy of Ophthalmology (AAO)
PO Box 7424
San Francisco CA 94120-7424
Telephone: 1-800-222-3937 (toll-free) 415-561-8500
Fax: 415-561-8533
AAO is an association of doctors specializing in eye diseases. The Academy's Eye Care America helpline provides information and publications and connects eligible older people with ophthalmologists who provide free eye care in their community. US citizens qualify for free care at age 65 if they have no health insurance and have not seen an eye doctor for at least 3 years.
American Academy of Orthopaedic Surgeons (AAOS)
6300 North River Road
Rosemont, IL 60018-4262
Telephone: 847-823-7186 (toll free) 800-346-AAOS
Fax: 847-823-8125
AAOS is a nonprofit organization of doctors specializing in bones, joints, muscles, ligaments, and tendons. Contact AAOS for information on orthopaedic medicine including arthritis, osteoporosis, artificial joints, and prevention of hip fractures. Publications on orthopaedic medicine, many specifically for older people, are available.
American Academy of Otolaryngology Head and Neck Surgery, Inc.
(AAO)
1 Prince Street
Alexandria VA 22314
Telephone: 703-836-4444
Fax: 703-683-5100
The Academy is an organization of doctors specializing in ear, nose, and throat problems and diseases of the head and neck. Contact AAO for referrals to specialists and publications on topics such as cosmetic facial surgery, head and neck tumors, treatments for certain types of hearing loss, and balance disorders.
American Academy of Physical Medicine and Rehabilitation (AAPMR)
330 North Wabash Ave., Suite 2500
Chicago IL 60611
Telephone: 312-464-9700
Fax: 312-464-0227
The Academy is an organization of physicians who are specialists in the field of physical medicine and rehabilitation. Contact AAPMR for referrals to physiatrists or for information and publications about rehabilitation medicine.
American Association for Geriatric Psychiatry (AAGP)
7910 Woodmont Avenue, Suite 1050
Bethesda MD 20814-3004
Telephone: 301-654-7850
Fax: 301-654-4137
The Association works to improve the mental health and well-being of older people. Contact AAGP for information on geriatric psychiatry and to receive referrals to specialists. Available publications include Growing Older, Growing Wiser: Coping with Expectations, Challenges and Changes in Later Years, and brochures on topics such as Alzheimer's disease, depression, and the role of the geriatric psychiatrist. Some consumer publications are free.
American Association for Marriage and Family Therapy (AAMFT)
112 South Alfred St.
Alexandria VA 22314
Telephone: 703-838-9808
Fax: 703-838-9805
AAMFT is a professional association of qualified marriage and family therapists. The Association provides referrals to marriage and family therapists and offers publications on topics including divorce, depression, and sexual problems.
American Association of Cardiovascular and Pulmonary Rehabilitation
(AACVPR)
401 North Michigan Ave., Suite 2200
Chicago IL 60611
Telephone: 312-321-5146
Fax: 312-527-6635
AACPR is an organization of certified heart, lung, and blood specialists that provides information on diagnosis, treatment, and disease prevention. Information and publications are available on consumer guidelines for cardiac rehabilitation and purchasing fitness equipment.
American Brain Tumor Association (ABTA)
2720 River Road
Des Plaines IL 60018
Telephone: 1-800-886-2282 (toll-free); 847-827-9910 (Patient Line)
Fax: 847-827-9918
ABTA is a nonprofit organization, offering free social work consultations, a nationwide database of established support groups, mentorship for people who want to start a support group, a resource listing of specialist physicians, and referrals to organizations providing services for brain tumor patients. Publications on brain tumors, treatment, and coping with disease are available.
American Cancer Society (ACS)
Check the ACS website for your local office's address.
Telephone: 1-800-ACS-2345 (227-2345) (toll-free)
ACS is a national, community-based volunteer health organization, providing information on cancer and its prevention. The Society sponsors a variety of programs such as Man to Man (education and support for men with prostate cancer) and workshops such as Taking Charge of Money Matters which addresses financial concerns arising from cancer treatment. Local ACS offices sponsor services for cancer patients and their families, including self-help groups, transportation programs, and limited financial aid. Contact the ACS for free publications. Spanish language resources are available.
American Chiropractic Association (ACA)
1701 Clarendon Boulevard
Arlington VA 22209
Telephone: 1-800-986-4636 (toll-free) 703-276-8800
Fax: 703-243-2593
ACA is a professional organization of chiropractors. It offers educational programs on spinal problems, posture, physical fitness, and occupational safety. Contact the ACA to buy publications and materials on spinal health and safety. Visit the website to find a chiropractor.
American Chronic Pain Association
P.O. Box 850
Rocklin CA 95677
Telephone: 1-800-533-3231 (toll-free)
Fax: 916-632-3208
The American Chronic Pain Association offers support and education for individuals with chronic pain and their families.
American College of Health Care Administrators
300 North Lee Street
Alexandria VA 22314
Telephone: 703-739-7900
Fax: 703-739-7901
ACHCA is a professional society for administrators in long-term care. It offers educational programming, career development opportunities, and certification.
American College of Obstetricians and Gynecologists (ACOG)
409 12th Street, SW ; PO Box 96920
Washington DC 20090-6920
Telephone: 202-638-5577
ACOG is a professional society of doctors specializing in women's health care. Contact ACOG for referrals. For free pamphlets on osteoporosis, menopause, and hormone replacement therapy, send an e-mail to resources@acog.org with the topic name of the information desired, and the mailing address for the location where information should be sent.
American College of Physicians (ACP)
190 North Independence Mall West
Philadelphia PA 19106-1572
Telephone: 1-800-523-1546 (toll-free) Ext. 2600; 215-351-2600
ACP is the nation's largest medical specialty society. Members of ACP specialize in a variety of areas such as in internal medicine, cardiology, infectious diseases, rheumatology, gastroenterology, and oncology. Contact the ACP for referrals. ACP produces Healthscope, a film series on public health.
American College of Rheumatology Association of Rheumatology
Health Professionals
1800 Century Place, Suite 250
Atlanta GA 30345
Telephone: 404-633-3777
Fax: 404-633-1870
The ACR is an organization for physicians, health professionals, and scientists that advances rheumatology through continuing education, research, advocacy, and practice support. Health education materials are available online.
American College of Sports Medicine (ACSM)
PO Box 1440
Indianapolis IN 46206-1440
Telephone: 317-637-9200
Fax: 317-634-7817
ACSM is a scientific and medical association of health professionals interested in exercise. It offers training and certification. ACSM's Active Aging Partnership, focuses on education, research, and improving practice for those committed to working with older adults. For free information on exercise for older people, send a self-addressed, stamped envelope.
American College of Surgeons (ACS)
633 North Saint Clair Street
Chicago IL 60611-3211
Telephone: 312-202-5000 Toll Free: 1-800-621-4111
Fax: 312-202-5001
ACS is a national organization offering educational materials and information about qualified surgeons and surgical treatments for many illnesses and injuries. Contact ACS to locate board-certified surgeons. Public education materials are available on frequently performed types of surgery.
American Council of the Blind (ACB)
1155 15th Street, NW, Suite 1004
Washington DC 20005
Telephone: 1-800-424-8666 (toll-free) 202-467-5081
Fax: 202-467-5085
ACB is a national organization that advocates for blind and visually impaired people. It provides educational programs, health care services, information about Social Security benefits for visually impaired people, vocational training, and other health and social services. Toll-free information, referrals, and free educational materials are available.
American Counseling Association (ACA)
5999 Stevenson Avenue
Alexandria VA 22304
Telephone: 1-800-347-6647 (toll-free)
Fax: 800-473-2329
ACA offers information to older people on adult psychological development and aging. A catalog of publications and videos is available.
American Dental Association (ADA)
211 East Chicago Avenue
Chicago IL 60611-2678
Telephone: 312-440-2500 Ext: 2593
ADA is a professional organization that conducts dental research and evaluates findings from dental science for the public. State and local ADA chapters provide referrals to dentists. Publications are available on subjects such as tooth decay, dentures, smoking, diet, and mouth care. Online publications cover topics such as gum disease, finding a dentist, and resolving disputes over treatment.
American Diabetes Association (ADA)
1701 North Beauregard Street
Alexandria VA 22311
Telephone: 1-800-DIABETES (342-2383) (toll-free)
ADA provides information and educational materials on preventing, treating, and living with diabetes. The Association has specific outreach programs for minority communities including the Diabetes Assistance and Resources Program, providing information in English and Spanish to the Hispanic community, the African American Program, and Awakening the Spirit, which disseminates diabetes to the Native American community. Local ADA chapters offer support and referrals to community agencies and services.
American Dietetic Association (ADA)
120 South Riverside Plaza, Suite 2000
Chicago IL 60606-6995
Telephone: 1-800-877-1600 (toll-free)
ADA is a professional society of registered dieticians and other dietetic professionals who provide nutrition information, education, counseling, and care. One of ADA's professional practice groups focuses on the special needs of older people and offers nutrition counseling and indirect assistance through State and local meal programs. Call ADA to locate a registered dietician.
American Foundation for the Blind (AFB)
11 Penn Plaza, Suite 300
New York NY 10001
Telephone: 1-800-AFB-LINE (232-5463) (toll-free); 212-502-7600
Fax: 212-502-7777
A national, nonprofit organization, AFB provides services and support for people who are blind or visually impaired. AFB supports technologies such as the Talking Books program and provides information and mentoring on technology assistance for people who are blind. Books, pamphlets, videos, and periodicals about blindness are available.
American Health Assistance Foundation (AHAF)
22512 Gateway Center Drive
Clarksburg MD 20871
Telephone: 1-800-437-AHAF (437-2423) (toll-free); 301-948-3244
Fax: 301-258-9454
AHAF provides information and supports research on age- related illnesses. The Foundation supports three research programs: Alzheimer's Disease (AD) Research (along with the Alzheimer's Family Relief Program) offers emergency grants of up to $500 to AD patients in need and their caregivers, National Glaucoma Research, and the National Heart Foundation. Contact AHAF for free publications on AD, glaucoma, heart disease, and stroke.
American Health Care Association (AHCA)
1201 L Street, NW
Washington DC 20005
Telephone: 202-842-4444
Fax: 202-842-3860
AHCA is an organization representing the interests of nursing homes, assisted living centers, and subacute care facilities. Publications are available about nursing homes, guardianship, assisted living, financing, and long-term care services.
American Heart Association (AHA)
National Center, 7272 Greenville Avenue
Dallas TX 75231
Telephone: 1-800-AHA-USA1 (242-8721) (toll-free); 1-888-4-STROKE (478-7653)
(toll-free for the American Stroke Association).
Fax: 214-570-5930
AHA is a nonprofit organization funding research and providing information on the diagnosis, treatment, and prevention of heart diseases and stroke. Contact AHA for its cookbooks, guide to heart attack treatment, and guide to fitness.
American Horticultural Therapy Association (AHTA)
201 East Main Street, Suite 1405
Lexington KY 40507-2004
Telephone: 1-800-634-1603 (toll free); 859-514-9177
Fax: 859-514-9166
AHTA is a nonprofit, membership organization that promotes and advances horticultural therapy as a therapeutic intervention and rehabilitation option. The Association provides information related to the principles and practices of horticultural therapy.
http://www.hospitalconnect.com
American Hospital Association (AHA)
One North Franklin Street
Chicago IL 60606-3421
Telephone: 312-422-3000
Fax: 312-422-4591
AHA is a national nonprofit association representing all types of hospitals and health care networks, as well as patients and families. AHA provides education for health care leaders and information on health care issues and trends.
http://www.liverfoundation.org
American Liver Foundation
75 Maiden Lane, Suite 603
New York NY 10038
Telephone: 1-800-GO-LIVER (465-4837, toll-free) or 1-888-4HEP-USA
(443-7872, toll-free)
Fax: 212-483-8179
The American Liver Foundation is a nonprofit organization with information on liver-related diseases, including hepatitis.
American Lung Association (ALA)
61 Broadway, 6th floor
New York NY 10006
Telephone: 1-800-LUNG-USA (586-4872) (toll-free) 212-315-8700 (national
headquaters) 1-800-548-8252 (to speak to a lung health professional)
ALA is dedicated to the prevention, cure, and control of lung diseases such as asthma, emphysema, tuberculosis, and lung cancer. The Association offers community service, public health education, advocacy, and research.
American Medical Association (AMA)
515 North State Street
Chicago IL 60610
Telephone: 1-800-621-8335 (toll-free)
AMA is an organization of licensed doctors that distributes scientific information on health and sets standards on medical law and practice. Local AMA associations can provide referrals to qualified doctors. AMA publishes the Journal of the American Medical Association, other subscription medical journals, and books for sale, including an encyclopedia of medicine.
American Medical Directors Association (AMDA)
10480 Little Patuxent Parkway, Suite 760
Columbia MD 21044
Telephone: 1-800-876-2632 (toll free); 410-740-9743
Fax: 410-740-4572
AMDA is a national professional association representing doctors who care for older people in a variety of long- term care settings, including nursing facilities, hospice, home care, continuing care retirement communities, and assisted living. The Association provides education, advocacy, information, and professional development for long-term care professionals. AMDA has information on health care policy, regulations, and clinical practice guidelines.
http://www.americanmenopause.org/
American Menopause Foundation (AMF)
350 Fifth Avenue, Suite 2822
New York NY 10118
Telephone: 212-714-2398
The Foundation is a nonprofit health organization providing support and assistance on all issues concerning menopause. AMF has information on scientific research and coordinates a network of volunteer support groups for women.
American Music Therapy Association (AMTA)
8455 Colesville Road, Suite 1000
Silver Spring MD 20910
Telephone: 301-589-3300
Fax: 301-589-5175
AMTA is a nonprofit organization that advocates, promotes, and provides resources and information on the uses and benefits of music therapy. Contact AMTA for referrals as well as for publications and audiovisual materials.
American Nurses Association (ANA)
8515 Georgia Ave., Suite 400
Silver Spring MD 20910
Telephone: 1-800-274-4ANA (4262) (toll-free); 301-628-5000
Fax: 301-628-5001
ANA, a national association of registered nurses, serves as an advocate for nursing practitioners as well as sponsors research and continuing education. Contact the Association for Facts About Nursing and other publications. ANA sets standards for the practice of gerontological nursing.
American Occupational Therapy Association, Inc. (AOTA)
4720 Montgomery Lane
Bethesda MD 20824-1220
Telephone: 301-652-2682
Fax: 301-652-7711
AOTA offers information on the role of occupational therapy in promoting functional independence, preventing disability, and maintaining health. Contact AOTA for referrals to local practitioners and therapy programs. The Association publishes two periodicals, OT Practice and the American Journal of Occupational Therapy, as well as many books for educators.
American Optometric Association (AOA)
243 North Lindbergh Boulevard, 1st floor
St. Louis MO 63141
Telephone: 1-800-365-2219 (toll-free) 314-991-4100
Fax: 314-991-4101
AOA, a national organization of optometrists, evaluates ophthalmic products and sponsors continuing education programs. It offers VISION USA, a free eye-care program for uninsured or low-income older people and their families. Contact AOA for referrals to certified optometrists and for publications such as Driving Tips for Older Adults, Contact Lenses After 40, and fact sheets on floaters, macular degeneration, and glaucoma.
American Orthopaedic Foot and Ankle Society
6300 North River Rd., Suite 510
Rosemont IL 60018
Telephone: 1-800-235-4855 (toll free) 847-698-4654
Fax: 847-692-3315
American Osteopathic Association
142 East Ontario Street
Chicago IL 60611
Telephone: 1-800-621-1773 (toll-free) 312-202-8000
Fax: 312-202-8200
The American Osteopathic Association represents osteopathic physicians (D.O.'s, doctors of osteopathic medicine), promotes public health, encourages scientific research, and is the accrediting agency for all osteopathic medical schools and health care facilities.
American Parkinson's Disease Association (APDA)
135 Parkinson Ave.
Staten Island NY 10305
Telephone: 1-800-223-2732 (toll-free) 718-981-8001
Fax: 718-981-4399
A nonprofit organization, APDA funds research to find a cure for Parkinson's disease. APDA's toll-free line refers callers to local chapters for information on community services, specialists, and treatments. Publications and educational materials are available on Parkinson's disease, speech therapy, exercise, diet, and aids for daily living.
American Pharmaceutical Association (APhA)
2215 Constitution Avenue, NW
Washington DC 20037-2985
Telephone: 1-800-237-2742 (toll-free) 202-628-4410
Fax: 202-783-2351
APhA is the national society of licensed pharmacists providing public health information and referrals to resources on medicine and public policy. Available publications include Managing Medicines As You Grow Older, National Medical Awareness Test, and Self- Medication Awareness Test.
American Physical Therapy Association (APTA)
1111 North Fairfax Street
Alexandria VA 22314
Telephone: 1-800-999-2782 (toll-free) 703-684-2782
Fax: 703-684-7343
APTA is an organization of physical therapists providing referrals to APTA geriatric-certified therapists and information on debilitating ailments like arthritis, stroke, scoliosis, and sudden onset of illness. APTA's Section on Geriatrics offers publications on topics such as osteoporosis; incontinence; neck pain; carpal tunnel syndrome; hip, knee, or shoulder care; and what physical therapists can offer older adults.
American Podiatric Medical Association (APMA)
9312 Old Georgetown Road
Bethesda MD 20814
Telephone: 1-800-FOOT-CARE (366-8227) (toll-free) 1-800-ASK-APMA (toll-free)
301-571-9200
Fax: 301-530-2752
APMA is an association of podiatrists providing services and information on foot problems and foot health. Contact APMA for information on local chapters and referrals to certified podiatrists. Publications on proper foot care and effects of arthritis and diabetes on feet are available.
American Psychiatric Association (APA)
1000 Wilson Blvd., Suite 1825
Arlington VA 22209-3901
Telephone: 703-907-7300
Fax: 703-907-1085
APA is an association of psychiatrists, physicians specializing in diagnosing and treating people with mental and emotional disorders. Its Council on Aging establishes standards for psychiatric care of older people. Contact the APA for information on elder care issues, including medication use by older people, treatment of Alzheimer's disease, and nursing homes. Contact APA for referrals to local psychiatrists.
American Psychological Association (APA)
750 First Street, NE
Washington DC 20002-4242
Telephone: 1-800-374-2721 (toll-free) 202-336-5500
APA is a professional society of psychologists that provides assistance and information on mental, emotional, and behavioral disorders. Contact the APA for a list of State chapters, information on the psychosocial aspects of aging, and referrals to APA- member psychologists. The APA's section on older people produces publications on topics such as dementia and dementia research. Publications include a quarterly subscription magazine, Psychology and Aging.
http://www.redcross.org/
http://www.cruzrojaamericana.org
American Red Cross
2025 E Street, NW
Washington DC 20006
Telephone: 1-800-HELP-NOW (435-7669) (toll-free) (donations only)
202-303-4498 1-800-257-7575 (Spanish)
The Red Cross offers health information programs, health services, blood donation services, disaster relief, and emergency services to the public and the Armed Forces. Local chapters provide programs for older people, including retirement planning, crime prevention instruction, safety courses, health screening clinics, and home nurse care instruction. Publications about programs, information, and services are available.
http://www.mentalhelp.net/selfhelp/
American Self-help Group Clearinghouse
100 E. Hanoer Avenue, Suite 202
Cedar Knolls NJ 07927-2020
Telephone: 973-326-8853 (group information hotline)
Fax: 973-326-9467
American Sleep Apnea Association
1424 K Street, NW, Suite 302
Washington DC 20005
Telephone: 202-293-3650
Fax: 202-293-3656
The American Sleep Apnea Association focuses on reducing injury, disability, and death from sleep apnea, and enhancing the well-being of those affected by this common disorder.
American Social Health Association
P.O. Box 13827
Research Triangle Park NC 27709
Telephone: 1-800-227-8922 (toll-free) or 919-361-8400
The American Social Health Association is a nonprofit organization providing support and resources, referrals, and information about sexually transmitted diseases.
American Speech-Language-Hearing Association (ASHA)
10801 Rockville Pike
Rockville MD 20852
Telephone: 1-800-638-8255 (toll-free)
Fax: 877-541-5035
ASHA represents the interests of medical specialists in speech, language, and hearing science and advocates for people with communication-related disorders. Contact ASHA's toll-free telephone line for information on speech-language legislation, communication disorders, or referrals to specialists. ASHA produces publications and fact sheets on topics such as communication disorders and hearing aids.
http://www.strokeassociation.org/
American Stroke Association (ASA)
American Heart Association National Center
Dallas TX 75231
Telephone: 1-888-4STROKE (478-7653) (toll-free) 1-800-AHA-USA-1 (242-8721)
(toll-free)
Fax: 214-570-5930
ASA, a division of the American Heart Association, provides the Stroke Family Warmline, a toll-free information and referral service offering lists of certified doctors who are stroke specialists and volunteer stroke survivors or family members. Callers receive support and can request free information. ASA publishes Stroke Connection, a priced subscription magazine for survivors and families.
American Tinnitus Association (ATA)
PO Box 5
Portland OR 97207
Telephone: 1-800-634-8978 (toll-free) 503-248-9985
Fax: 503-248-0024
ATA is a volunteer organization supporting research and providing information on tinnitus, a constant buzzing or ringing in the ears or head. ATA sponsors self-help groups nationwide each offering information, assistance, and referrals to community services and tinnitus specialists.
http://www.urologyhealth.org/
http://www.auanet.org/
American Urological Association Foundation, Inc.
1000 Corporate Blvd., Suite 410
Linthicum MD 21090
Telephone: 410-689-3700 1-866-746-4282 (toll free)
Fax: 410-689-3998
The Foundation works toward the prevention and cure of urologic disease in part by keeping patients, family members, and friends informed about these disorders, treatment options, and recent research findings. AFUD operates six national health education councils that distribute patient education materials on a variety of urologic topics. A specific website addresses prostate health. Online publications are free; publications are available by mail for a fee.
Aplastic Anemia And MDS International Foundation, Inc.
P.O. Box 613
Annapolis MD 21404-0613
Telephone: 410-867-0242 Toll-free: 1-800-747-2820
Fax: 410-867-0240
ARCH National Respite Network and Resource Center
800 Eastowne Drive, Suite 105
Chapel Hill ND 27514
Telephone: 919-490-5577
Fax: 919-490-4905
This national resource center provides information on respite care and a respite locator program, technical assistance to State organizations, and an information clearinghouse.
Arthritis Foundation (AF)
P.O. Box 7669
Atlanta GA 30357
Telephone: 1-800-568-4045 (toll-free) 404-965-7888 404-872-7100
Fax: 404-872-0457
AF is a nonprofit, volunteer organization focusing on research and information to cure, prevent, or better treat arthritis and related diseases. Contact AF for information on arthritis, related diseases (such as lupus erythmatosus and rheumatism), and referrals to local chapters, specialists, or support groups. Publications and videos are available on topics such as self-help and exercise therapy.
Asthma and Allergy Foundation of America
1233 12th Street, NW
Washington DC 20036
Telephone: 1-800-7-ASTHMA (1-800-727-8462, toll-free), or 202-466-7643
The Asthma and Allergy Foundation of America is a nonprofit organization offering information, services, and support groups.
Better Hearing Institute
515 King St.
Alexandria VA 22314
Telephone: 1-800-EAR-WELL (327-9355) (toll-free) (Hearing Helpline)
703-684-3391
Fax: 703-684-6048
The Institute is a nonprofit, educational organization providing information on medical, surgical, and rehabilitation options for improving hearing loss and on hearing aids. Contact the Institute's Hearing Helpline for facts on hearing loss and a list of publications.
Better Sleep Council
501 Wythe Street
Alexandria VA 22314
Telephone: 703-683-8371
The BSC offers information about the importance of a good night's sleep and the value of sleep, the sleep system, and the sleep environment.
Centers for Disease Control and Prevention (CDC)
1600 Clifton Road
Atlanta GA 30333
Telephone: 1-800-311-3435 (toll-free) 404-639-3311
The CDC, part of the Federal Government, is the lead agency for protecting the health and safety of people at home or abroad. The CDC produces fact sheets that help people make informed decisions about their health and health care. Contact the CDC for public information, health statistics, funding opportunities, and prevention guidelines. Spanish language resources are available.
Dana Alliance for Brain Initiatives
745 Fifth Avenue, Suite 900
New York NY 10151
Telephone: 212-223-4040
Fax: 212-317-8721
The Dana Alliance promotes public education about brain research. The Alliance links the public, press, and policymakers with experts and resources in the field of neuroscience. It also hosts conferences on the brain and brain diseases. Contact the Dana Alliance for publications on brain research and diagnosis and treatment of brain disorders.
Depression and Bipolar Support Alliance
730 North Franklin St., Suite 501
Chicago IL 60610
Telephone: 1-800-826-3632 (toll-free)
Fax: 312-642-7243
This nonprofit organization provides information written in plain language about depression and bipolar disorder. DBSA supports research on diagnosis, effective and tolerable treatments, and a possible cure.
DES Action
158 S. Stanwood Rd.
Columbus OH 43209
Telephone: 1-800-DES-9288 (337-9288) (toll-free)
DES Action is a nonprofit organization providing information about the risks of exposure to diethylstilbestrol (DES), a hormone prescribed for pregnant women from the 1940s through 1971 that caused health problems in mothers and their children. Contact DES Action for referrals to specialists familiar with medical complications resulting from DES use. Free publications on the risks of DES are available.
Elder Industry
The website for the Joy Loverde’s book, the Complete Eldercare Planner, a comprehensive, all-in-one resource on eldercare.
http://www.epilepsyfoundation.org/
Epilepsy Foundation
4351 Garden City Drive
Landover MD 20785
Telephone: 1-800-332-1000 (toll-free) 1-800-332-4050 (toll-free) (National
Epilepsy Library) 301-459-3700
Fax: 301-577-2684
The Foundation is a national volunteer health organization supporting research, education, advocacy, and services for people with seizure disorders. Contact the Foundation for a list of local chapters, referrals to local specialists, support groups, camps, travel assistance, respite care, and employment assistance. Videos and a catalog of publications are available.
Fifty-Plus Lifelong Fitness
2483 East Bayshore Road, Suite 202
Palo Alto CA 94303
Telephone: 650-843-1750
Fax: 650-843-1758
Fifty-Plus Lifelong Fitness is a nonprofit organization that promotes an active lifestyle for older people. Fifty-Plus publishes a newsletter, distributes books and videos, and sponsors physical activity events for mid-life and older adults.
http://www.fda.gov
http://www.fda.gov/oc/seniors/
Food and Drug Administration (FDA)
5600 Fishers Lane
Rockville MD 20857
Telephone: 1-888-INFO-FDA (463-6332) (toll-free); 1-888-723-3366 (toll-free,
Food Information Line); 1-800-822-7967 (toll-free, Vaccine Adverse Event
Reporting System); 1-800-838-7715 (toll-free, Mammography Information
Service).
FDA, part of the Federal Government, regulates the safety and effectiveness of food products, additives, drugs, medical devices, and cosmetics. Contact FDA for information on safe drug use and side effects, vitamins, and laws regulating medicines and foods. FDA has information for older people on topics including cancer, health fraud, nutrition, buying medicines online, and food safety. The FDA online newsletter, Maturity Matters, is specially designed for older people. It provides information about FDA regulated products for older adults, their families and their caregivers, and can be found at http://www.fda.gov/cdrh/maturityhealthmatters.
Food and Nutrition Information Center (FNIC), Department of
Agriculture
Agricultural Research Service/National Agriculture Library
Beltsville MD 20705-2351
Telephone: 301-504-5719
Fax: 301-504-6409
FNIC, part of the Federal Government, provides information, publications, and audiovisual materials on nutrition. Resource guides on nutrition and older people, heart disease, diabetes, vegetarianism, food safety, and food labeling are available.
Foundation for Biomedical Research (FBR)
818 Connecticut Avenue, NW, Suite 900
Washington DC 20006
Telephone: 202-457-0654
Fax: 202-457-0659
FBR is a national organization advocating the ethical use of animals in scientific and medical research. Contact the Foundation for information and publications on how animal research helps scientists understand human health and aging.
Glaucoma Research Foundation (GRF)
251 Post St., Suite 600
San Francisco CA 94108
Telephone: 1-800-826-6693 (toll-free) 415-986-3162
Fax: 415-986-3763
GRF is a national, nonprofit organization providing information and advocacy for people with glaucoma. Contact GRF for information on the causes, diagnosis, treatment, and prevention of glaucoma, referrals to specialists, and coping strategies for patients. Publications include the quarterly newsletter, Gleams, and a glaucoma patient guide.
http://www.hrsa.gov/hillburton/
Hill-Burton Free Medical Care Program
Health Resources and Services Administration (HRSA)
Rockville MD 20857
Telephone: 1-800-638-0742 (toll-free) 1-800-492-0359 (toll-free) (Maryland
residents) 301-443-5656
Fax: 301-443-0619
Hospitals and other health care facilities receive Federal funds for construction or modernization under the Hill-Burton Program. In return, these facilities provide a specific amount of free or below cost health care services to eligible people. Contact the program for a list of participating facilities as well as information on eligibility.
Huntington's Disease Society of America (HDSA)
505 Eighth Ave., Suite 902
New York NY 10018
Telephone: 1-800-345-HDSA (4372) (toll-free) 212-242-1968, Ext.10
Fax: 212-239-3430
The Society is a nonprofit organization providing information, services, and advocacy for people with Huntington's disease (HD) and their families. Contact HDSA for research information on causes, diagnosis, and treatment of HD as well as referrals to testing centers, specialists, self-help groups, and social services. Publications and audiovisual materials on HD are available.
http://www.hersfoundation.com/
Hysterectomy Educational Resources and Services Foundation (HERS)
422 Bryn Mawr Avenue
Bala Cynwyd PA 19004
Telephone: 610-667-7757 1-888-750-HERS (4377) (toll free)
Fax: 610-667-8096
HERS Foundation is a nonprofit organization providing information on hysterectomy (surgical removal of the uterus) and oophorectomy (removal of the ovaries). Contact HERS for telephone counseling and support services. A lending library contains medical literature on topics such as fibroids, hyperplasia, and ovarian conditions. A list of publications is available on request.
Indian Health Service (IHS)
The Reyes Building
Rockville MD 20852-1627
Telephone: 301-443-3593
Fax: 301-443-0507
The IHS, part of the Federal Government, operates a comprehensive health service program for American Indians and Alaska Natives. Services include hospital and community-based medical care, rehabilitation, and disease prevention. The IHS strives for maximum tribal involvement in all aspects of its services.
Institute for Cancer Prevention (IFCP)
1 Dana Road
Valhalla NY 10595
Telephone: 914-592-2600
Fax: 914-592-6317
IFCP is a nonprofit organization conducting research on cancer; preventive medicine; and the effects of lifestyle, environment, and nutrition on health. Contact IFCP for information and publications on healthy living, heart disease, cancer, and high cholesterol.
http://www.essentialtremor.org/
International Essential Tremor Foundation (IETF)
PO Box 14005
Lenexa KS 66285-4005
Telephone: 888-387-3667 (toll-free) 913-341-3880
Fax: 913-341-1296
ITF is an international, nonprofit organization providing support, information on medication use and surgical treatment, research, and other resources for people diagnosed with essential tremor. Contact ITF for referrals to medical specialists, a list of support groups by State, and information on more than 20 tremor disorders. Members may write or call for background literature and answers to specific questions.
International Hearing Society (IHS)
16880 Middlebelt Road, Suite 4
Livonia MI 48154
Telephone: 1-800-521-5247 (toll-free) (Hearing Aid Helpline) 734-522-7200
(outside the US and Canada)
Fax: 734-522-0200
IHS is a professional organization providing assistance to consumers in locating a hearing aid specialist, support, and repair services. The Hearing Aid Helpline offers information and publications on how hearing works, types of hearing loss, and design and use of hearing instruments.
http://clerccenter.gallaudet.edu/
Laurent Clerc National Deaf Education Center
Gallaudet University 800 Florida Avenue, NE
Washington DC 20002
Telephone: 202-651-5000
Leukemia and Lymphoma Society, Inc. (LLS)
1311 Mamaroneck Avenue
White Plains NY 10605
Telephone: 1-800-955-4572 (toll-free) 914-949-5213
Fax: 914-949-6691
LLS provides information, advocacy, and assistance for patients with leukemia and related cancers such as lymphoma, multiple myeloma, and Hodgkin's disease. Contact LLS for information, referrals to specialists and local chapters offering financial assistance to patients with leukemia, and support groups. Publications on leukemia and related cancers are available.
Lighthouse National Center for Vision and Aging (LNCVA)
The Sol & Lillian Goldman Building 111 East 59th Street
New York NY 10022
Telephone: 1-800-829-0500 (toll-free) 212-821-9200
Fax: 212-821-9707
LNCVA provides advocacy, support, information, and resources on vision impairment and blindness. Contact the Lighthouse for referrals to specialists and resources on visual disability, vision rehabilitation, links to related services, as well as information on eye diseases such as macular degeneration, glaucoma, cataracts, and diabetic retinopathy. Publications and audiovisual materials are available on topics including vision, vision disorders, treatment options, and rehabilitation strategies.
Lupus Foundation of America (LFA)
2000 L Street, NW, Suite 710
Washington DC 20036
Telephone: 1-800-558-0121 (toll-free) (information line) 202-349-1155
Fax: 202-349-1156
LFA is a nonprofit organization supporting research and distributing information about diagnosis and treatment of lupus erythematosus, a chronic autoimmune disease. Contact the LFA for referrals to specialists, information about treatment and research, a listing of local chapters and support groups, other resource organizations, and a list of publications.
Medline Plus
Brand knowledge base of medical information from the U.S. National Library of Medicine and the National Institute of health.
http://www.narcolepsynetwork.org
Narcolepsy Network, Inc.
P.O. Box 294
Pleasantville NY 10570
Telephone: 1-888-292-6522 (toll free) 401-667-2523
Fax: 401-633-6567
http://www.hispanichealth.org/
National Alliance for Hispanic Health
1501 16th Street, NW
Washington DC 20036
Telephone: 202-387-5000
Fax: 202-797-4353
The Alliance is a network of health and human service providers fostering the health, well-being, and prosperity of Hispanics. Network members provide consumer information, help formulate culturally competent standards of care, support research into specific health concerns facing Hispanics, and promote appropriate use of technology. Spanish language resources are available.
National Alliance for the Mentally Ill (NAMI)
Colonial Place Three
Arlington VA 22201
Telephone: 1-800-950-NAMI (950-6264) (toll-free) NAMI Helpline 703-524-7600
Fax: 703-524-9094
NAMI offers support groups, education, advocacy, and research to help people with mental illness. The Alliance seeks to educate all people about severe and persistent mental illnesses to eliminate stigma and promote access to services. Search the website for lists of local affiliates and state organizations.
National Association for Continence (NAFC)
PO Box 1019
Charleston SC 29402
Telephone: 1-843-377-0900 1-800-BLADDER (252-3337) (toll-free) (ordering
line)
Fax: 843-377-0905
NAFC, formerly Help for Incontinent People, is a nonprofit organization providing advocacy, education, and support to people with incontinence and their families. Contact NAFC for referrals to specialists, resources, and information about the causes, prevention, diagnosis, treatments, and management alternatives for incontinence. Publications are available.
http://www.physicalfitness.org/
National Association for Health & Fitness (NAHF)
c/o Be Active New York State 65 Niagra Square, Room 607
Buffalo NY 14202
Telephone: 716-583-0521
Fax: 716-851-4309
NAHF is a nonprofit organization promoting physical fitness, sports, and healthy lifestyles. The Association supports State Governor's Councils on Physical Fitness and Sports. NAHF supports employee health and fitness programs including Let's Get Physical, an interactive educational program based on the Surgeon General's 1996 report recommending moderate physical activity most days of the week.
National Association for Human Development (NAHD)
1705 Besales St., NW, Suite 300
Washington DC 20036
Telephone: 202-328-2191
Fax: 202-265-6682
NAHD is a nonprofit organization providing information and materials for national, State, and local groups helping people maintain their physical, mental, and social well-being. Contact NAHD program specialists for slides, videos, booklets, posters, and training manuals on health and physical fitness. Program materials focusing on older people include topics such as wellness, physical fitness, preventive medicine, self- care, and retirement planning.
National Association of Community Health Centers (NACHC)
7200 Wisconsin Avenue, Suite 210
Bethesda MD 20814
Telephone: 301-347-0400
Fax: 301-347-0459
NACHC is a national association representing community health centers nationwide. Contact NACHC for referrals to local health centers and information on the Association's programs as well as health care regulation and policy updates.
National Association of Nutrition and Aging Services Programs
(NANASP)
1612 K Street, NW, Suite 400
Washington DC 20006
Telephone: 202-682-6899
Fax: 202-223-2099
NANASP, a membership organization, supports a broad range of nutrition and related services for community- dwelling older people by training nutrition providers and advocating for older people. Publications include a Legislative Action Manual and The Washington Bulletin.
National Association of Professional Geriatric Care Managers
Welcome to the National Association of Professional Geriatric Care Managers (NAPGCM) home page. We invite you to explore our site -- whether you are looking for care for a family member or want a deeper understanding of this growing profession.
National Association of the Deaf (NAD)
8630 Fenton St., Suite 820
Silver Spring MD 20910
Telephone: 301-587-1788
Fax: 301-587-1791
NAD is a private, nonprofit organization representing the interests and rights of people who are deaf or hearing impaired. It advocates for greater access to education, employment, health care, and social services. Contact NAD for information on legal assistance, public policy on deafness and disabilities, and referrals to products that assist deaf and hearing impaired people. Publications are available.
National Association on HIV Over Fifty (NAHOF)
23 Miner St.
Boston MA 02215
Telephone: 617-233-7107
Fax: 617-262-5667
NAHOF is a membership organization promoting the availability of a full range of educational, prevention, service, and health care programs for people over age 50 and affected by HIV. NAHOF provides a forum to exchange information and share concerns about HIV and older adults.
National Cancer Institute (NCI)
NCI Public Inquiries Office 6116 Executive Blvd.
Bethesda MD 20892
Telephone: 1-800-4-CANCER (422-6237) (toll-free) (Cancer Information
Service-CIS)
NCI, part of NIH, is the lead agency for cancer research and statistics, treatments, clinical trials, patient education, and public information on all types of cancer, risk factors, and prevention. NCI's toll-free Cancer Information Service provides accurate, up-to-date, science-based answers. Information Specialists can answer questions in English, Spanish, and on TTY. The CIS provides referrals to cancer specialists and other related resources, including where to find survivor groups. Many free publications are offered.
National Center for Complementary and Alternative Medicine Clearinghouse
(NCCAM)
National Institutes of Health (NIH)
Gaithersburg MD 20898
Telephone: 1-888-644-6226 (toll-free) 301-519-3153
Fax: 1-866-464-3616 (toll-free) (Fax-on-demand
The Clearinghouse, funded by NCCAM, provides information on alternative medical therapies not commonly used or previously accepted in conventional Western medicine. Contact the Clearinghouse for information on holistic healing traditions, including acupuncture, herbs, homeopathy, therapeutic massage, and traditional oriental medicine. NCCAM does not recommend specific therapies. Publications are available by fax-on-demand and on the website.
National Center for Health Statistics (NCHS)
Centers for Disease Control and Prevention (CDC)
Hyattsville MD 20782
Telephone: 301-458-4000 1-866-441-NCHS (441-6247) (toll-free)
NCHS, part of the Federal Government, is the agency that monitors and compiles information on the Nation's health. NCHS statistical programs on aging collect information on the health of older people, their lifestyles, exposure to unhealthy influences, diagnosis and age of onset for illnesses or disabilities, and patterns of health care service use. Contact NCHS for reports on trends in health and aging.
National Center on Minority Health and Health Disparities (NCMHD)
National Institutes of Health (NIH), 6707 Democracy Boulevard, Suite
800,MSC 5465
Bethesda MD 20892-5465
Telephone: 301-402-1366
Fax: 301-480-4049
NCMHD, part of NIH, conducts and supports research, training, dissemination of information, and other programs with respect to minority health conditions and other populations with health disparities.
National Coalition for Adult Immunization (NCAI)
National Foundation for Infectious Diseases 4733 Bethesda Avenue,
Suite 750
Bethesda MD 20814
Telephone: 301-656-0003
Fax: 301-907-0878
NCAI is a network of organizations formed to achieve better health through immunizations and support for science-based recommendations. NCAI helps coordinate National Adult Immunization Awareness Week, an annual observance in the fall. Check the website for a chart outlining the NCAI-recommended adult immunization schedule. Spanish language resources are available.
National Council on Alcoholism and Drug Dependence (NCADD)
22 Cortlandt Street, Suite 801
New York NY 10007
Telephone: 1-800-NCA-CALL (622-2255) (toll-free 24-hour "Hope line")
212-269-7797
Fax: 212-269-7510
NCADD is a nonprofit organization providing advocacy, assistance, and information on alcoholism and drug addiction. Contact NCADD for information on causes, diagnosis, and treatments; referrals to specialists; lists of community resource centers; and NCADD-affiliated organizations nationwide. Fact sheets, brochures, and videotapes also are available.
http://www.digestive.niddk.nih.gov/
National Digestive Diseases Information Clearinghouse (NDDIC)
National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)
Bethesda MD 20892-3570
Telephone: 1-800-891-5389 (toll-free) 301-654-3810
Fax: 703-738-4929
NDDIC, funded by NIDDK, part of NIH, provides referrals to digestive diseases organizations and support groups, as well as searches from its database of patient and professional education materials. Fact sheets are available on gastroesophageal reflux disease, hemorrhoids, constipation, ulcers, and irritable bowel syndrome.
National Drug and Treatment Referral Routing Service
SAMHSA'S National Clearinghouse for Alcohol and Drug Information P.O.
BOX 2345
Rockville MD 20847
Telephone: 1-800-729-6686 1-877-767-8432 (in Spanish)
Fax: 301-468-6433
National Eye Health Education Program (NEHEP)
National Eye Institute Information Center (NEIIC)
Bethesda MD 20892-3655
Telephone: 301-496-5248
Fax: 301-402-1065
NEHEP, funded by the NEI, part of NIH, is a partnership of professional, CIvic, and voluntary organizations and Federal agencies. NEHEP provides referrals to vision professionals and other health resources. The Program offers free materials to educate the public about how to protect eye health and prevent vision loss, and distributes information on such topics as preventing diabetic eye disease, glaucoma, and low vision.
The National Eye Institute
National Institutes of Health
Bethesda MD 20892
Telephone: 301-496-5248
The National Eye Institute (NEI) conducts and supports research that helps prevent and treat eye diseases and other vision disorders. This research leads to sight-saving treatments to reduce visual impairment and blindness. Part of the NEI mission is to develop public and professional education programs that help prevent blindness, reduce visual impairment, and increase awareness of services and devices that are available for people with low vision.
National Foundation for the Treatment of Pain
P.O. Box 70045
Houston TX 77270
Telephone: 713-862-9332
Fax: 713-862-9346
The National Foundation for the Treatment of Pain is a nonprofit organization providing resources for medical and other professionals concerned with treatment of pain.
National Health Information Center (NHIC)
Office of Disease Prevention and Health Promotion (ODPHP)
Washington DC 20013-1133
Telephone: 1-800-336-4797 (toll-free) 301-565-4167
Fax: 301-984-4256 Faxback: 301-468-1204
NHIC, a service of the Federal Government, links consumers and health professionals with resources and information. The Center provides health information, contacts for Federally-supported health information centers, lists of national health observances, and toll-free numbers sponsored by the Federal Government.
National Heart, Lung, and Blood Institute (NHLBI) Information
Center
PO Box 30105
Bethesda MD 20824-0105
Telephone: 1-800-575-WELL (9355) (toll-free) (recorded information)
301-592-8573
Fax: 240-629-3246
The Information Center, funded by NHLBI, part of NIH, provides referrals to resource organizations and information on elevated cholesterol, high blood pressure, heart disease, exercise, risk of and recovery from stroke, chronic cough, asthma, cystic fibrosis, and sleep disorders. Publications include two newsletters, HeartMemo and AsthmaMemo.
National Institute Arthritis and Musculoskeletal and Skin Diseases
Information Clearinghouse
National Institute of Arthritis and Musculoskeletal and Skin Diseases
(NIAMS)
Bethesda MD 20892-3675
Telephone: 1-877-22-NIAMS (226-4267) (toll-free) 301-495-4484
Fax: 301-718-6366
NIAMS Information Clearinghouse is funded by NIAMS, part of NIH. The Clearinghouse provides information and resources on all forms of arthritis, musculoskeletal diseases such as fibromyalgia, as well as skin diseases. Contact the Clearinghouse for information on research and referrals to research programs and community resources. Publications are available on the causes, treatments, and prevention of arthritis, lupus, musculoskeletal disorders, and diseases of bones, joints, and skin.
National Institute of Allergy and Infectious Diseases (NIAID)
National Institutes of Health (NIH)
Bethesda MD 20892-6612
Telephone: 301-496-5717
Fax: 301-402-3573
NIAID, part of NIH, conducts and supports research on the prevention, diagnosis, and treatment of HIV/AIDS and other infectious and allergic diseases. Contact NIAID for information on allergies, as well as viral and bacterial illnesses. The Institute provides referrals to specialists, support groups, and other resources; publications and fact sheets are available, some in Spanish.
National Institute of Child Health and Human Development (NICHD)
Information Clearinghouse
PO Box 3006
Rockville MD 20847
Telephone: 1-800-370-2943
Fax: 301-984-1473
The Clearinghouse, funded by NICHD, part of NIH, is a resource for publications and health issues related to NICHD research. The Institute conducts and supports research on neurobiologic, developmental, and behavioral processes that determine and maintain the health of children, Adults, families, and populations. Spanish language resources are available.
National Institute of Dental and Craniofacial Research (NIDCR)
National Institutes of Health (NIH)
Bethesda MD 20892-2290
Telephone: 301-496-4261 301-402-7364 (National Oral Health Information
Clearinghouse - NOHIC)
Fax: 301-408-4098
NIDCR, part of NIH, conducts and supports research on the causes, treatment, and prevention of diseases of the teeth, gums, and facial bones. Contact NOHIC for facts about oral health in people with disabling conditions and referrals to specialists and related resources. Contact NIDCR for information on available publications, audiovisual materials, and fact sheets.
National Institute of General Medical Sciences (NIGMS)
45 Center Drive, MSC 6200
Bethesda MD 20892-6200
Telephone: 301-496-7301
Fax: 301-402-0224
NIGMS, part of NIH, conducts and supports research in medical fields such as genetics, cellular and molecular biology, and pharmacology. Publications include Medicines for You (also available in Spanish), and Inside the Cell.
National Institute of Mental Health (NIMH)
National Institute of Mental Health
Bethesda MD 20892-9663
Telephone: 1-866-615-6464 (toll-free) 301-443-4513
Fax: 301-443-4279
NIMH, part of NIH, conducts and supports mental health research including mental disorders of aging. Contact NIMH for information on mental health and aging, Alzheimer's disease, anxiety disorders, depression, and suicide.
National Institute of Neurological Disorders and Stroke (NINDS)
NIH Neurological Institute
Bethesda MD 20824
Telephone: 1-800-352-9424 (toll-free) (information service) 301-496-5751
Fax: 301-402-2186
NINDS, part of NIH, conducts and supports research on stroke and neurological disorders. NINDS provides information on its research targets, including stroke, head and spinal injuries, tumors of the central nervous system, epilepsy, multiple sclerosis, Huntington's disease, Parkinson's disease, and Alzheimer's disease. A directory of voluntary health agencies is available.
National Institute on Alcohol Abuse and Alcoholism (NIAAA)
5635 Fishers Lane, MWC 9304
Bethesda MD 20892-9304
Telephone: 301-443-3860
Fax: 301-443-6077
NIAAA, part of NIH, conducts and supports research on alcoholism and alcohol abuse. Contact the NIAAA for information on genetic and behavioral aspects of alcoholism, physiologic effects of alcohol abuse, and diagnosis, treatment, and prevention of alcohol-related problems.
National Institute on Deafness and Other Communication Disorders
(NIDCD)
National Institutes of Health (NIH) 31 Center Drive, MSC 2320
Bethesda MD 20892-2320
Telephone: 1-800-241-1044 (toll-free) (NIDCD Information Clearinghouse)
301-496-7243
Fax: 301-402-0018
NIDCD, part of NIH, conducts and supports research on normal mechanisms as well as diseases and disorders of hearing, balance, smell, taste, voice, speech, and language. NIDCD develops and disseminates health information to the public based on scientific discovery.
National Institute on Drug Abuse (NIDA)
National Institutes of Health (NIH)
Bethesda MD 20892-9561
Telephone: 1-800-729-6686 (toll-free) (National Clearinghouse for
Alcohol and Drug Information–NCADI) 301-443-1124
Fax: 1-888-644-6432 (toll-free) (NIDA Infofax) 1-888-889-6432 (toll-free)
(TTY NIDA Infofax) 301-443-7397
NIDA, part of NIH, conducts and supports research on the physiology of specific drug addictions, effects of abused substances, and current and potential treatments. Contact NIDA for scientific information, and patient and public education materials on drug abuse, its causes, consequences, prevention, and treatment. Spanish language resources are available.
http://www.kidney.niddk.nih.gov/
National Kidney and Urological Diseases Information Clearinghouse
(NKUDIC)
National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)
Bethesda MD 20892-3580
Telephone: 1-800-891-5390 (toll-free) 301-654-4415
Fax: 703-738-4929
NKUDIC, funded by NIDDK, provides referrals to specialists, resource organizations, and support groups. Publications and information on subjects such as kidney stones, prostate gland problems, urinary incontinence, and urinary tract infections are available.
National Kidney Foundation (NKF)
30 East 33rd Street
New York NY 10016
Telephone: 1-800-622-9010 (toll-free) 212-889-2210
Fax: 212-689-9261
NKF is a nonprofit organization providing information on the diagnosis, treatment, and prevention of kidney and urinary tract diseases. The Foundation supports research and organ donation programs. Contact the NKF for a list of local chapters that provide services, including blood and drug banks, screening programs, transportation assistance, publications, and referrals to specialists.
http://www.nlm.nih.gov/
http://www.nlm.nih.gov/medlineplus/
National Library of Medicine (NLM)
National Institutes of Health (NIH) 8600 Rockville Pike
Bethesda MD 20894
Telephone: 1-888-FIND-NLM (346-3656) (toll-free) 301-594-5983
Fax: 301-402-1384
NLM, part of NIH, is the world's largest medical library. The collection can be consulted in the reading room or requested on interlibrary loan. NLM offers nationwide access to information through a National Network of Libraries of Medicine. The database, MEDLINE, is available via the worldwide web. MEDLINEplus links the public to many sources of consumer health information.
National Library Service for the Blind and Physically Handicapped
(NLSBPH)
Library of Congress
Washington DC 20011
Telephone: 1-800-NLS-READ (657-7323) (toll-free) 202-707-5100
Fax: 202-707-0712
NLSBPH, funded by the Library of Congress, is a network of regional and local libraries that provide free library services to blind and physically disabled people. Contact NLSBPH about programs such as postage-free delivery and return-mailing of audio-books and books and magazines in Braille. Specially designed Talking Books and cassette players also are lent to the public free. NLSBPH provides information on blindness and physical disabilities.
National Medical Association (NMA)
1012 10th Street, NW
Washington DC 20001
Telephone: 202-347-1895
Fax: 202-898-2510
NMA promotes the interests of doctors and patients of African descent. NMA offers a physician referral service and the brochure Looking for Dr. Right: Guide to Choosing a Physician Using 1-888-NMAPHYSicians.
National Mental Health Association (NMHA)
2000 N. Beauregard Street 6th Floor
Alexandria VA 22311
Telephone: 1-800-969-NMHA (6642) (toll-free) (National Mental Health
Information Center) 703-684-7722
Fax: 703-684-5968
The NMHA Information Center provides referrals to mental health specialists, as well as publications such as Coping with Growing Older, Answers to Your Questions About Clinical Depression.
National Multiple Sclerosis Society (NMSS)
733 3rd Avenue, 6th Floor
New York NY 10017-3288
Telephone: 1-800-FIGHT-MS (344-4867) (toll-free)
Fax: 212-986-7981
The Society is a nonprofit organization providing support and information on the diagnosis and treatment of multiple sclerosis (MS). Contact NMSS for referrals to specialists and local chapter offices. A list of free publications and films on MS is available from local chapters.
National Organization for Rare Disorders (NORD)
55 Kenosia Avenue
Danbury CT 06813-1968
Telephone: 203-744-0100 1-800-999-6673 (toll free)
Fax: 203-798-2291
NORD is a federation of voluntary health organizations and individuals, dedicated to helping people with rare diseases and assisting the organizations that serve them. NORD is committed to the identification, treatment, and cure of rare disorders through education, advocacy, research, and service.
National Osteoporosis Foundation (NOF)
1232 22nd Street, NW
Washington DC 20037-1292
Telephone: 202-223-2226
Fax: 202-223-2237
NOF is a nonprofit, voluntary health organization dedicated to promoting lifelong bone health to reduce the widespread prevalence of osteoporosis and related fractures. NOF works to find a cure for osteoporosis through research, education, and advocacy. The Foundation provides general information on osteoporosis; its quarterly newsletter and booklets are available through membership.
http://nutritionandaging.fiu.edu
National Policy and Resource Center on Nutrition and Aging
Department of Dietetics and Nutrition
Miami FL 33199
Telephone: 305-348-1517
Fax: 305-348-1518
The FIU Center, funded primarily by the Administration on Aging, works to reduce malnutrition and promotes good nutritional practices among older adults nationwide. The Center provides information dissemination, training and technical assistance, and policy analysis.
National Prevention Information Network (NPIN)
Centers for Disease Control and Prevention (CDC)
Rockville MD 20849-6003
Telephone: 1-800-458-5231 (toll-free) 919-361-4892
Fax: 1-888-282-7681 (toll-free)
NPIN, sponsored by the CDC, is a national reference, referral, and distribution service for information on HIV/AIDS, other sexually transmitted diseases, and tuberculosis. NPIN's services are designed to facilitate information sharing about prevention, treatment, and support services. NPIN does not provide medical advice.
National Psoriasis Foundation (NPF)
6600 SW 92nd Avenue, Suite 300
Portland OR 97223-7195
Telephone: 1-800-723-9166 (toll-free) 503-244-7404
Fax: 503-245-0626
NPF is a nonprofit organization providing free information on psoriasis and psoriatic arthritis research and treatment. NPF provides directories of specialists and products, opportunities to volunteer for research projects, links to support groups, and educational newsletters and booklets.
National Rehabilitation Information Center (NARIC)
4200 Forbes Boulevard, Suite 202
Lanham MD 20706
Telephone: 1-800-346-2742 (toll-free) 301-459-5900
Fax: 301-459-4263
NARIC, funded by the Department of Education, provides information on rehabilitation of people with physical or mental disabilities. Contact NARIC for database searches on all types of physical and mental disabilities, as well as referrals to local and national facilities and organizations. All of NARIC's database information is available online, free.
National Rural Health Association (NRHA)
521 E. 63rd St.
Kansas City MO 64111
Telephone: 816-756-3140
Fax: 816-756-3144
NRHA is a nonprofit, professional organization targeting health care problems unique to rural areas and serving as a liaison between rural health care providers and older people. Contact NRHA for information on health care delivery to rural providers and for its quarterly Journal of Rural Health.
http://www.sleepfoundation.org/
National Sleep Foundation (NSF)
1522 K Street, NW, Suite 500
Washington DC 20005
Telephone: 202-347-3471
Fax: 202-347-3472
NSF is a nonprofit organization providing services and information about sleep disorders. Contact the Foundation for a list of accredited sleep centers and local specialists. A variety of NSF publications on sleep, sleep disorders, and related topics are available.
National STD and AIDS Hotlines
American Social Health Association P.O. Box 13827
Research Triangle Park NC 27709
Telephone: 1-800-342-AIDS (2437) (toll-free) (English) 1-800-227-8922
(toll-free) (English) 1-800-344-SIDA (7432) (toll-free) (Spanish)
The Hotlines offer information, referrals, and free publications about prevention, risks, and treatment of sexually transmitted diseases.
National Stroke Association (NSA)
9707 East Easter Lane, Building B
Englewood CO 80127
Telephone: 1-800-STROKES (787-6537) (toll-free)
Fax: 303-649-1328
The Association provides information about stroke prevention, acute treatment, recovery, and rehabilitation to the public. NSA offers referrals to support groups, care centers, and local resources for stroke survivors, caregivers, and family members.
National Women's Health Network (NWHN)
514 10th Street, NW, Suite 400
Washington DC 20004
Telephone: 202-347-1140
Fax: 202-347-1168
NWHN works to ensure that women have access to quality, affordable health care, serving as a clearinghouse of information on women's health issues. The Network also lobbies for increased governmental support for women's health care. Contact NWHN for information and publications on women's health issues.
http://www.uchsc.edu/ai/nehcrc/nehcrc_index.htm
Native Elder Health Care Resource Center (NEHCRC)
American Indian & Alaska Native Programs University of Colorado Health
Sciences Center Department of Psychiatry Nighthorse Campbell Native Health
Building P.O. Box 6508
Aurora CO 80045
Telephone: 303-724-1414
Fax: 303-724-1474
NEHCRC promotes the health of older Native people, including Alaska Natives and Native Hawaiians by increasing cultural competence among health care professionals. The Center focuses on four target areas: determining health status, improving medical standards, increasing access to care, and mobilizing community resources. Contact NEHCRC for information on its programs and publications.
NIH Osteoporosis and Related Bone Diseases National Resource
Center (NIH-ORBD- NRC)
2 AMS Circle
Bethesda MD 20892
Telephone: 1-800-624-BONE (2663) (toll-free) 202-223-0344
Fax: 202-293-2356
The Resource Center provides patients, health professionals, and the public with resources and information on osteoporosis, Paget's disease of the bone, osteogenesis imperfecta, and other metabolic bone diseases. The Center is supported by the National Institute of Arthritis and Musculoskeletal and Skin Diseases and six other Institutes and Offices.
NIH SeniorHealth.gov
Health information for older adults from the National Institute on Aging and the National Library of Medicine – both part of the National Institutes of Health.
North American Menopause Society (NAMS)
PO Box 94527
Cleveland OH 44101
Telephone: 440-442-7550
Fax: 440-442-2660
NAMS is a nonprofit multidisciplinary organization promoting women's health during midlife and beyond through an understanding of menopause. The Society supports research and serves as a resource for women and health care professionals. Spanish language resources are available.
http://dietary-supplements.info.nih.gov
Office of Dietary Supplements
National Institutes of Health
Bethesda MD 20892
Telephone: 301-435-2920
Fax: 301-480-1845
The Office of Dietary Supplements helps the public understand dietary supplements by evaluating scientific information, supporting research, disseminating research results, and educating the public. The ODS offers a wide variety of dietary supplement information on frequently asked questions, tips, decision-making, and food labeling and claims.
http://www.omhrc.gov
Office of Minority Health, part of the U.S Department of
Health and Human Services
P.O. Box 37337
Washington DC 20013
Telephone: 1-800-444-6472 (toll-free)
The Office of Minority Health develops health policies and programs to eliminate health disparities. It also provides consumer publications and health professional materials, many of which are in other languages, including Spanish, and makes referrals.
Office of Research on Women’s Health
900 Rockville Pike, Building 1, Room 201
Bethesda MD 20892
Telephone: 301-402-1770
Fax: 301-402-1798
The Office of Research on Women's Health (ORWH), part of the National Institutes of Health (NIH), supports efforts to improve the health of women through biomedical and behavioral research on the roles of sex and gender in health and disease.
Office on Smoking and Health (OSH)
Centers for Disease Control and Prevention
Atlanta GA 30341
Telephone: 1-800-CDC-INFO (232-4636) (toll-free)
OSH, part of the Federal Government, develops and distributes the annual Surgeon General's Report on Smoking and Health. Contact OSH for information on tobacco and details about the smoking and health database which is available on CD-ROM. Print publications on smoking also are available.
Opticians Association of America (OAA)
441 Carlisle Dr.
Herndon VA 20170
Telephone: 703-437-8780
Fax: 703-437-0727
OAA represents the optometric industry and provides information on eye health and industry regulation. OAA sets industry standards for prescription eyeglasses, contact lenses, and low-vision aids and can give referrals to qualified opticians. Contact the OAA for publications on optometry news and information.
Paget Foundation for Paget's Disease of Bone and Related Disorders
(PF)
120 Wall Street, Suite 1602
New York NY 10005-4001
Telephone: 212-509-5335 1-800-23-PAGET (72438)
Fax: 212-509-8492
PF provides information and programs for consumers and medical professionals about Paget's disease of bone and other bone disorders including primary hyperparathyroidism, fibrous dysplasia, osteoporosis, breast cancer metastatic to bone, and prostate cancer metastatic to bone.
Parkinson's Disease Foundation (PDF)
1359 Broadway, Suite 1509
New York NY 10018
Telephone: 1-800-457-6676 (toll-free) 212-923-4700
Fax: 212-923-4778
PDF is a nonprofit organization providing research funding, information, and supportive services to people with Parkinson's Disease. Contact the Foundation for referrals to specialists. Publications are available.
Partnership for Prescription Assistance
Telephone: 1-888-477-2669 (toll-free)
The Partnership for Prescription Assistance is an organization of pharmaceutical companies, doctors and other health care providers, patient advocacy organizations, and community groups who help people who lack prescription coverage get the medicines they need through public or private programs, if they are qualified.
http://www.fitness.gov/
http://presidentschallenge.org
President's Council on Physical Fitness and Sports (PCPFS)
Department W
Washington DC 20201
Telephone: 202-690-9000
Fax: 202-690-5211
PCPFS is an advisory body to the President and Secretary of the Department of Health and Human Services. The Council promotes opportunities in physical activity, fitness, and sports for all Americans. Contact PCPFS for information on physical activity/fitness, nutrition, health, and Council programs. Publications on physical education and health are available on the website.
http://www.preventblindness.org/
Prevent Blindness America (PBA)
211 West Wacker Drive, Suite 1700
Chicago IL 60606
Telephone: 1-800-331-2020 (toll-free)
PBA sponsors community services and public education about eye care, safety, and the diagnosis, treatment, and prevention of eye diseases. Local chapters offer community services, including vision screenings and self-help groups for those with glaucoma. Contact PBA for information and a list of publications.
http://www.pulmonaryfibrosis.org/
Pulmonary Fibrosis Foundation (PFF)
1332 North Halsted St., Suite 201
Chicago IL 60622
Telephone: 312-587-9272
Fax: 312-587-9273
PFF is a private, nonprofit organization providing assistance, resources, and information on pulmonary fibrosis and its related illnesses. Contact PFF for information on the diagnosis and treatment of PF and idiopathic pulmonary fibrosis, as well as referrals to specialists, resources, and support groups. Publications are available.
Restless Legs Syndrome Foundation
819 Second Street, SW
Rochester MN 55902
Telephone: 507-287-6465
Fax: 507-287-6312
The Foundation is a nonprofit agency that provides information about restless legs syndrome. It develops support groups and seeks to find better treatments and a definitive cure.
Robert Wood Johnson Foundation (RWJF)
P.O. Box 2316
Princeton NJ 08543
Telephone: 1-888-631-9989 (toll-free)
Fax: 609-627-6401
The RWJ Foundation is a private, philanthropic organization that supports basic health services and pursues improved services for people with chronic illnesses, prevention of substance abuse, and control of health care costs. Publications about the Foundation's programs on health care issues are available.
SAMHSA’s National Clearinghouse for Alcohol & Drug
Information
P.O. Box 2345
Rockville MD 20847
Telephone: 1-800-729-6686 (toll-free)
SAMHSA's National Clearinghouse for Alcohol and Drug Information (NCADI) is a resource for information about substance abuse prevention and addiction treatment. English- and Spanish-speaking information specialists can send materials; conduct customized searches; provide grant and funding information; and provide referrals.
Self Help for Hard of Hearing People, Inc. (SHHH)
7910 Woodmont Avenue, Suite 1200
Bethesda MD 20814
Telephone: 301-657-2248
Fax: 301-913-9413
SHHH provides information and services for people who are hard of hearing, including assistance on education, legal issues, and self-help. Local SHHH chapters can provide information on community references and referrals to specialists. Contact SHHH for information on coping with hearing problems, hearing aids, and educational workshops for older people with hearing loss. A list of publications and materials is available.
Skin Cancer Foundation
245 Fifth Avenue, Suite 1403
New York NY 10016
Telephone: 1-800-SKIN-490 (754-6490) (toll-free)
Fax: 212-725-5751
The Skin Cancer Foundation is a nonprofit organization providing information on the detection and treatment of skin cancer. The Foundation's brochures, newsletters, posters, and a new membership program give medical information and practical guidance on skin cancer. Send a self- addressed, stamped envelope for a list of publications.
Society for Neuroscience
1121 14th St., Suite 1010
Washington DC 20005
Telephone: 202-962-4000
Fax: 202-962-4941
The Society is an organization of scientists and physicians interested in the brain, spinal cord, and peripheral nervous system. Contact the Society for the fact sheet series called Brain Briefings, short newsletters explaining how basic neuroscience research leads to clinical applications.
Substance Abuse and Mental Health Services Administration (SAMHSA)
1 Choke Cherry Rd.
Rockville MD 20850
Telephone: 1-800-729-6686 (toll-free) (National Clearinghouse for
Alcohol and Drug Information-NCADI)
Fax: 301-468-6433
SAMHSA, part of the Federal Government, is responsible for improving the quality and availability of prevention, treatment, and rehabilitation services in order to reduce the illness, death, disability, and cost resulting from substance abuse and mental illness. Spanish language resources are available from NCADI.
